Webinar Data Sharing with Privacy
Protection for Research
Please tell us a bit about yourself
O a % 4
Provider of privacy sensitive data (I have data)
•••
l i r U s e r of privacy sensiti data (I want to use data)
82
a i•
10.14U00 A4ipov\I
ED
swag; Mopoi
Now: Presentations
Mentimeter questions resume after the presentations.
1. Hayo Schreijer & Joep Meindertsma (Dexes) 2. Guido van 't Noordende (Whitebox Systems)
3. Sofie Hansen (Lygature) 4.Wim Kees Janssen (Syntho)
5. Robert Griffioen (SURF)
14 Slides available later at https://www.surf.nl/en/data- exchange-trusted-data-sharing (scroll down)
Interested? Leave your email after the last Mentimeter question.
And novv? If you had to pick an approach ...?
35
9
Modify Control
Today's theme
• Modify
• Control
• Unknown
If you changed your mind, why?
N/A
Better solutions
Impressed with synthetic alternative
no
nice methods for control new insights
N/A
Modifying data seems to have serious pittfalls
It would be marvellous if the datsubject itself is in control
If you changed your mind, why?
Data ownership is key
More important un the end. Control is impossible in the end.
Reversibility anonymizationData at the source now imposes fewer
contraints
Control seems really possible New solution, synthetic
Modifying data seems to be
problematic. Data ethics questions by using synthetic data
Synthetic data!!
Even more convince with control.
Modification affect the data
quality/researchvalidity Best method depends on the data
0a•
If you changed your mind, vvhv?
Synthetic data
What do you consider the biggest barrier for sharing confidential data (if any)?
safety
trust
legislation
I
4(Due to how Mentimeter works, a few participants still saw the question, and responded)
Question was skipped due to time
constraints
What is the best vvav for users to increase value for the data provider?
0 0 0 0
Monetary reimbursements
Citation of the O w n e r s h i p d B e t t e r data sets t h e results (en. u n d e r s t a n d i n g
co-author of f o r data owners published o f t h e r own
result) d a t a
Please tell us a bit about yourself
•
•
•
FracKier at privacy sen sr:pw e data (I have data)
User of privacy sensitive data (I want to w e data)
Both
• N e i t h e r
M I L
•
Question was skipped due to time
constraints
Would you want to use any of the tools presented today?
Please tell us a bit about yourself
•
•
•
•
0 0 0 0 0
No I dorit I n t e r e s t i n g , I M a y b e in Y e s , I haw a A b s o l u t e l y , see a need s e e a need, t h e future s p e c i f i c l e t ' s go!
but not sure c a s e in mind
these are the right
tools
Prodder of povacy sensitive data (I have data) User of pavacy sensitrve data (I want to use data) Both
Nether
