Child and parental adaptation to pediatric oncology Vrijmoet-Wiersma, J.

Citation

Vrijmoet-Wiersma, J. (2010, January 14). Child and parental adaptation to pediatric oncology. Retrieved from https://hdl.handle.net/1887/14561

Version: Corrected Publisher’s Version

License: Licence agreement concerning inclusion of doctoral thesis in the Institutional Repository of the University of Leiden Downloaded

from: https://hdl.handle.net/1887/14561

Note: To cite this publication please use the final published version (if applicable).

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,, Table 1. Demographic characteristics of parents and children

Responders (N=107)nge SD Non-responders (N=39) SD

No. of children: (N=174) No. of children: (N=94)

Parent characteristics M Range SD M Range SD

Age 41.0 22-65 7.0 40.0 28-60 6.8

N % N %

Sex

Male 74 42.5 52 55.3*

Female 100 57.5 42 44.7

Educational level

Lower 41 23.6 33 35.1

middle 76 43.7 30 31.9

higher 57 32.8 31 33.0

Ethnicity

Dutch 161 92.5 73 77.7*

Non-Dutch 13 7.5 21 22.3

Marital status

Married/living with partner 161 92.5 87 92.6

Divorced/widowed/single 13 7.5 7 7.4

Hospital

Leiden 56 32.2 22 23.4

Utrecht 39 22.4 21 22.3

Groningen 79 45.4 51 54.3

Child characteristics M Range SD M Range SD

(N=174) (N=94)

Age at assessment (months) 115.0 8-218 61.8 106.2 17-230 59.3

Time since diagnosis (weeks) 40.5 5-110 25.3 42.4 8-110 22.0

N % N %

Sex

Male 57 53.3 20 51.3

Female 50 46.7 19 48.7

Diagnosis

ALL/ /JMML 41 38.3 12 30.8

AML 8 7.5 2 5.1

(Non)Hodgkin’s lymphoma 19 17.7 6 15.4

Bone tumors^a 14 13.1 3 7.7

Brain tumor 11 10.3 4 10.3

Neuroblastoma 5 4.7 1 2.6

Wilm’s tumor 4 3.7 3 7.7

Other 5 4.7 8 20.5

Treatment status

On treatment 86 80.4 17 43.6*

Off treatment 21 19.6 22 56.4

a Ewing sarcoma, osteosarcoma and synovia sarcoma

ALL = acute lymphatic leukaemia, JMML = juvenile myelomonocytic leukaemia, AML = acute myeloid leukaemia

* Significant difference between responders and non-responders (p < 0.05)

Table 2a. Means, Standard Deviations, and Internal Consistency of the Pediatric Inventory for Parents (N = 174)

PIP-F PIP-D

M (SD)
M (SD)

I. Communication 23.2 (4.5) .60 18.6 (5.4) .73

II. Medical care 24.0 (7.2) .85 16.9 (6.2) .84

III. Em. distress 43.1 (10.1) .88 44.6 (12.6) .91

IV. Role function 25.1 (7.1) .80 21.6 (7.4) .82

Total 115.4 (26.0) .94 101.7 (28.5) .95

PIP F = PIP Frequency, PIP D = PIP Difficulty, Em. = emotional

Table 2b. Means, Standard Deviations, and Internal Consistency of the Pediatric Inventory for Parents, mothers (N = 100) and fathers (N=74)

PIP-F mothers PIP-D mothers PIP-F fathers PIP-D fathers

M (SD)
M (SD)
M (SD)
M (SD)

I. Communication 24.3* (4.9) .52 19.1 (5.1) .73 22.0 (4.6) .69 17.9 (5.7) .82

II. Medical care 25.3* (7.1) .83 17.5 (5.9) .81 22.2 (6.9) .84 16.2 (6.6) .83

III. Em. distress 44.2* (11.3) .75 46.7* (12.1) .90 40.8 (9.5) .82 41.7 (12.7) .85

IV. Role function 25.8 (6.9) .76 22.1 (7.1) .78 24.1 (7.3) .88 20.9 (7.7) .92

Total 120.6* (26.3) .95 105.4* (27.4) .94 109.3 (25.7) .95 96.8 (29.3) .99

PIP F = PIP Frequency, PIP D = PIP Difficulty, Em. = emotional

* Significant difference between mothers and fathers (p < .05)

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Table 3. Goodness of Fit Indices for PIP Four-Factor and One-Factor Models*

Models
² df CFI TLI RMSEA SRMR

Frequency

Four-Factor Model 270.04 88 0.869 0.933 0.109 0.091

One-Factor Model 292.91 88 0.852 0.924 0.105 0.091

Four-Factor Model with 14,16 24,29

,24,36, 26,29, 29,36free 239.35 88 0.891 0.944 0.099 0.084

One-Factor Model with 14,16 24,29

^24,36, ^26,29 , ^29,36free 249.95 88 0.883 0.940 0.103 0.086

Difficulty

Four-Factor Model 235.73 88 0.895 0.956 0.098 0.081

One-Factor Model 253.06 87 0.882 0.950 0.105 0.085

Four-Factor Model with _14,16 _24,29

,24,36, 26,29 , 29,36 free 204.44 87 0.909 0.962 0.091 0.079

One-Factor Model with _14,16 _24,29

24,36, _26,29 , _29,36 free 227.85 87 0.900 0.957 0.096 0.082

*: weighted least squares means and variance adjusted estimation was applied to the polychoric correlation matrix; CFI = Comparative Fit Index, TLI = Tucker-Lewis index, RMSEA = Root Mean Square Error of Approximation, SRMR = Standardized Root Mean Square Residual.

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