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Child and parental adaptation to pediatric oncology Vrijmoet-Wiersma, J.

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Vrijmoet-Wiersma, J. (2010, January 14). Child and parental adaptation to pediatric oncology. Retrieved from https://hdl.handle.net/1887/14561

Version: Corrected Publisher’s Version

License: Licence agreement concerning inclusion of doctoral thesis in the Institutional Repository of the University of Leiden Downloaded

from: https://hdl.handle.net/1887/14561

Note: To cite this publication please use the final published version (if applicable).

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Table 1. Descriptive information of the study sample

Patient characteristics (n=21) Mean SD Range

Age at fi rst assessment (years) 11 4,8 3,7- 18,9

Time since SCT (months) 10 4.4 2-16

n %

Sex Male Country of origin Dutch Non-Dutch Diagnoses Malignant:

Leukemia (AML, ALL) Non-malignant:

Blood disease (SAA, MDS) Immune disease (SCID)

18

19 2

9

10 2

85

90 10

43

47 10 Parent characteristics (n=31)

Age at fi rst assessment (years) 42 5.5 35-59 Sex

Male 12 39

SCT = Stem cell transplantation; AML = Acute Myeloid Leukemia;

ALL = Acute Lymphoblastic Leukemia; SAA = Severe Aplastic Anemia;

MDS = Myeloid Dysplastic Syndrome; SCID = Severe Combined Immune Defi ciency syndrome.

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Table 2 Parenting stress scores (mothers) pre and post-SCT

PSI subscales Pre-SCT

Mean (sd) n=13

Post-SCT Mean (Sd) n=19

Norm group

n=161

Distractibility 33.3 (7.2) 32.5 (7.5) 30.6 (11.0)

Adaptability 28.1 (6.8) 28.4 (10.8) 32.3 (8.6)

Reinforces parent 19.2 (3.6) 22.0 (5.6) 17.3 (5.2)

Demanding 21.5 (9.3) 25.7 (13.6)* 20.8 (7.3)

Mood 20.1 (5.4) 22.8 (8.8) 21.7 (7.6)

Acceptance 18.9 (5.7) 22.3 (8.8) 22.6 (7.6)

Competence 33.2 (7.8) 34. 2 (7.3)* 29.4 (9.1)

Social isolation 10.2 (4.0) 12.5 (10.6) 13.5 (6.8)

Attachment 10.4 (3.5) 10.3 (4.1) 12.3 (4.3)

Health 13.1 (5.7) 14.8 (6.7) 13.6 (5.0)

Role restriction 15.5 (6.5) 16.5 (7.4) 14.3 (5.8)

Depression 23.1 (10.4) 24.8 (10.9) 26.8 (9.6)

Marital relation 13.6 (6.1) 13.7 (6.5) 13.5 (6.8)

Total PSI 259.8 (67.1) 277.3 (89.1)* 266.5 (66.9)

PSI, Parenting Stress Index. Higher scores refer to more problems.

* = < 0.05. Printed in bold: sign. difference with norm group; underlined: sign.

difference between pre and post-SCT.

Table 3. Bivariate correlations between independent variables with proxy-reported HRQoL pre and post-SCT

HRQoL Pre-SCT n =13 r p

HRQoL Post-SCT n=21 r p

Demographics

Time since SCT - - .26 n.s.

Child age -.47* .02 .17 n.s.

PSI subscales (mothers)

Distractibility .32 n.s. -.45* n.s.

Adaptability -.33 n.s. -.64* .01

Reinforces parent .03 n.s. -.61* .01

Demanding -.56* .04 -.71* .01

Mood -.35 n.s. -.71* .01

Acceptance -.22 n.s. -.67* .01

Competence -.37 n.s. -.51* .02

Social isolation -.48 n.s. -.33 n.s.

Attachment -.21 n.s. -.41 n.s.

Health . 01 n.s. -.58* .01

Role restriction -.10 n.s. -.61* .01

Depression -.30 n.s. -.64* .01

Marital relation .03 n.s. -.64* .01

Total parenting stress -.34 n.s. -.38 n.s.

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