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The handle http://hdl.handle.net/1887/58104 holds various files of this Leiden University dissertation

Author: Holst, Menno van der

Title: Neonatal brachial plexus palsy : impact throughout the lifespan

Date: 2017-12-20

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Neonatal brachial plexus palsy - impact throughout the lifespan

© Menno van der Holst, 2017.

ISBN: 978-94-6295-777-0

Photography: Menno van der Holst Illustrations: Margo van Os - van der Holst Design & Lay-out: wenz iD | Wendy Schoneveld

Printed by: Proefschriftmaken | Proefschriftmaken.nl

The printing of this thesis was financially supported by the Scientific College Physical Therapy (WCF) of the Royal Dutch Society for Physical Therapy (KNGF), Boehringer Ingelheim BV, Rijnlands Rehabilitation Center (RRC), Anna Fonds | NOREF Leiden

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NEONATAL BRACHIAL PLEXUS PALSY

impact throughout the lifespan

Proefschrift

ter verkrijging van

de graad van Doctor aan de Universiteit Leiden op gezag van Rector Magnificus prof. mr. C.J.J.M. Stolker

volgens besluit van het College voor Promoties te verdedigen op woensdag 20 december 2017

klokke 16.15 uur

door

Menno van der Holst geboren te Balkbrug, Avereest

in 1980

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Promotores prof. dr. T.P.M. Vliet Vlieland prof. dr. R.G.H.H. Nelissen Co-promotor dr. D. Steenbeek

Proefschriftcommissie prof. dr. J.J.G.M. Verschuuren prof. dr. M.J.A. Malessy

prof. dr. A.C.H. Geurts, Afdeling revalidatiegeneeskunde Radboud Universitair Medisch Centrum, Nijmegen

dr. P. Aarts, Afdeling kinderrevalidatie, Sint Maartenskliniek, Nijmegen

dr. J.A. van der Sluijs, Afdeling Orthopaedie, Vrije Universiteit Medisch Centrum, Amsterdam

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Things don't have to change the world to be important

Steve Jobs, Wired 1996

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CHAPTER 1

General introduction 9

CHAPTER 2

Evaluation of shoulder function after secondary surgery in children with neonatal brachial plexus palsy

Journal of Pediatric Rehabilitation Medicine: An Interdisciplinary Approach 8 (2015) 187–196

27

CHAPTER 3

Outcome of secondary shoulder surgery in children with neonatal brachial plexus palsy with and without nerve surgery treatment history: a longterm follow-up study

Journal of Rehabilitation Medicine 2016 July 18; 48 (7): 609-17

43

CHAPTER 4

Translation and adaptation of the Pediatric Outcome Data Collecting Instrument (PODCI) into the Dutch language and preliminary validation in children with neonatal brachial plexus palsy

Journal of Pediatric Rehabilitation Medicine: An Interdisciplinary Approach 8 (2015) 219–226

63

CHAPTER 5

Hand Use at Home questionnaire; validity and reliability in children with neonatal brachial plexus palsy or unilateral cerebral palsy Submitted

79

CHAPTER 6

Neonatal brachial plexus palsy in children aged 0 to 2.5 years;

parent-perceived family impact, quality of life, and upper extremity functioning

Pediatric Neurology 2016 September; 62:34-42

95

CHAPTER 7

Healthcare use and information needs in children with neonatal brachial plexus palsy: a cross-sectional survey among 465 patients Submitted

113

CHAPTER 8

Participation restrictions in (young) adults with neonatal brachial plexus palsy: the patient perspective

Disability and Rehabilitation, 2017 september

135

Content of thesis

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CHAPTER 9

Summary and General discussion 155

CHAPTER 10

Nederlandse samenvatting en Discussie 173

CHAPTER 11

List of publications Curriculum vitae Dankwoord APPENDIX:

Outcome measures used in the ZAP Plexus study

192 194 195 197

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