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Metabolic surgery : you don't know what your transformation is going to look like : a medical anthropological research on the perceptions of wellbeing and health among patients who underwent metablic surgery on Aruba

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Metabolic  surgery:    

"You  don't  know  what  your  transformation  is  going  to  look  like"    

A  medical  anthropological  research  on  the  perceptions  of  wellbeing  and  health  among  patients  

who  underwent  metabolic  surgery  on  Aruba                    

Name:  Marloes  van  Drie  

MSc  Medical  Anthropology  and  Sociology   Supervisor:  Dr.  Else  Vogel    

Second  Reader:  Dr.  Anja  Hiddinga   November  11,  2016  

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LIST  OF  ABBREVIATIONS    

AAA  =  American  Association  of  Anthropologists   AZV  =  Algemene  Ziektenkosten  Verzekering   BMI  =  Body  Mass  Index  

HAES  =  Health  At  Every  Size  

HOH  =  Dr.  Horacio  Oduber  Hospitaal   GDP  =  Gross  Domestic  Product  

IBISA  =  Instituto  Biba  Saludabel  y  Activo   MEP  =  Movimiento  Electoral  di  Pueblo   NCD  =  Non  Communical  Diseases   UK  =  United  Kingdom  

WHO  =  World  Health  Organisation                                                

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ACKNOWLEDGEMENTS    

Before   you   lies   my   thesis   as   an   occlusion   of   my   Master   of   Medical   Anthropology.   This   thesis  is  not  just  an  occlusion  of  my  master;  it  is  also  the  end  of  an  adventure.  It  brought  me  joy,   frustration  at  times,  and  above  all  knowledge  about  the  discipline  and  about  myself.  

  The   decision   to   undertake   this   adventure   was   not   easily   made.   After   I   got   my   Masters   Degree   in   Psychology,   I   was   certified   to   work   as   a   Medical   Psychologist.   However,   the   study   program  left  me  with  lots  of  questions  rather  than  with  the  so  called  “tool  kit”  to  enter  the  work   field.  In  the  Master  of  Medical  Anthropology  I  found  the  “tools”  to  further  polish  my  thinking.  I  am   proud  that  I  am  capable  of  presenting  this  thesis  to  you.  However  I  owe  much  thanks  to  the  people   who  have  aided  me  during  this  process,  and  I  would  not  want  to  start  this  thesis  without  using   this  opportunity  to  thank  them.    

  First   and   foremost   I   would   like   to   thank   my   informants,   the   wonderful   and   inspiring   people  on  whose  narratives  this  thesis  is  built.  Without  your  openness,  honesty  and  vulnerability,   I  could  not  have  written  the  document  that  I  finished  today.  Secondly,  many  thanks  go  out  to  the   people  I  have  met  on  Aruba  who  helped  me  realize  the  research  project.  These  “gatekeepers”,  as   we  call  you  in  anthropological  terms,  made  my  stay  on  Aruba  a  beautiful  and  pleasant  adventure.   Alex  Ponson,  Yvonne  Swierenga  and  Wendie  Botjes,  thank  you  for  your  interest  in  this  project  and   thanks  for  all  of  the  opportunities  that  you  have  created  for  me.  

 I  owe  much  thanks  to  my  supervisor,  Else  Vogel.  Else  has  helped  me  to  structure  my  mind   and  polish  my  thinking  in  all  the  phases  that  I  went  through  while  writing  this  thesis.  The  writing   process  was  not  always  easy  and  I  experienced  her  supervision  as  inspiring  and  motivating.        I   would   like   to   acknowledge   the   Department   of   Medical   Anthropology.   I   learned   a   lot   during  the  courses  I  took.    

Last  but  not  least,  Bram  and  Diane.  Thank  you  for  your  unconditional  support  during  the   writing  process.                      

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TABLE  OF  CONTENT    

1.  Introduction                     6  

  Thesis  outline                     9  

2.  Methodology,  ethics  and  reflexivity               10  

  Data  collection                     10  

  Data  analysis                     11  

  Ethics                       12  

  Reflexivity                     13  

3.  Theoretical  framework                   15  

  A  history  of  the  globesity  epidemic               15  

  One  size  does  not  fit  all                   17  

  Conceptualizing  the  body                   18  

  Metabolic  surgery:  an  uncertain  cure               19  

4.  What  is  obesity?  The  meaning  of  obesity  on  Aruba           21  

Obesity  as  a  dangerous  physical  condition             21  

Obesity  as  an  economical  burden                 22  

Obesity  as  a  result  of  societal  prosperity;  the  obesogenic  environment       26  

Obesity  as  a  cultural  identity                 28  

Interim  conclusion                   28  

5.  Pursuing  good  health:  a  patient’s  exploration  of  metabolic  surgery       30  

  Options  to  fight  obesity                   30  

  Being  a  good  patient  and  being  a  good  mother,  it’s  not  possible  at  the  same  time:       role  conflicts  in  health  seeking  obese  individuals           31     ‘They  don’t  see  the  real  me”:  conflicting  identities           34     Metabolic  surgery:  revealing  the  true  self  or  a  quick  fix?           35  

  Interim  conclusion                   37  

6.  Rebuilding  life  after  metabolic  surgery               38  

  Changing  everyday  eating  practices               38  

  Social  eating  practices                   39  

  Lack  of  nutrients                     41  

  “Loose”  skin  and  disease                   43  

  Transformations  and  reflections  after  metabolic  surgery:  restoring  identity     44  

  Interim  conclusion                   45  

7.  Conclusion  and  discussion                   46                   The  potential  of  analysing  paradoxes  in  patients’  lives             47  

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  Bibliography                     49   Annex  A                       55   Annex  B                                               56                                                                                                    

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CHAPTER  1     INTRODUCTION      

Bon  Bini  to  Aruba,  “one  happy  island”.  This  slogan  pops  into  my  vision  everywhere  I  go  in   Aruba.  It  stands  on  the  first  poster  I  see  at  the  airport,  it  is  printed  on  billboards  along  the  road   and  in  my  apartment  it  is  the  first  sentence  in  the  manual  of  the  housekeeping  to  welcome  me  at   my  “home  away  from  home”.  I  arrived  at  the  island  for  my  field  study  about  obesity  and  metabolic   surgery.  In  the  past  thirty  years  the  prevalence  of  obesity  has  risen  drastically  in  Aruban  society   with  an  estimated  prevalence  of  28%  in  1993  to  41%  in  2006  (Kock,  Thijsen  and  Visser,  2008).   This   drastic   rise   of   weight   gain   is   not   just   occurring   in   Aruba,   it   occurs   on   a   global   scale   over   populations   (Finucane   et   al,   2011).   The   World   Health   Organisation   (WHO)   released   a   report   in   2000  that  warned  against  a  global  “obesity  epidemic”.  The  choice  of  the  word  “epidemic”  triggers   associations   with   images   of   close   threat   to   citizens   and   pending   catastrophes   (Knutsen,   2015).   The  biomedical  scientific  literature  I  read  prior  to  the  fieldwork  period  continuously  emphasizes   the  great  dangers  that  overweight  people  are  exposed  to.  The  risky  state  of  having  “excess”  weight   severely   increases   risks   on   diseases   like   heart   attacks,   strokes,   pains   in   joints,   arthritis   and   sleeping  problems

.  

The  message  is  clear:  being  overweight  is  almost  as  risky  as  being  terminally   ill.  If  this  is  to  be  true,  how  can  Aruba  with  78%  of  overweight  inhabitants  be  the  “happiest  island   of  the  Caribbean”?    

 Nowadays  many  Arubans  tell  that  they  live  on  a  “heavy  island”  instead  of  a  “happy  island”.   By   saying   so,   they   link   their   body   weight   to   their   personal   experience   of   happiness/well-­‐being.   One  of  the  persons  who  thinks  of  herself  as  heavy  is  Mila.  I  met  her  in  the  surgical  ward,  because   she  wants  to  undergo  weight  loss  surgery.  She  is  certain  that  she  will  become  happier  when  her   weight  decreases.  “My  health  is  going  to  change  because  of  my  weight,”  says  Mila.  She  continues:   “Once  you  lost  the  weight,  health  will  follow.  And  once  your  health  is  better,  the  other  things  will   follow.  I  will  feel  better”.  Mila  wants  to  swap  her  heaviness  into  happiness.  

Mila  tells  me  that  she  is  impaired  by  her  weight.  She  is  out  of  breath  sooner  than  she  used   to  be.  Her  knees  hurt,  she’s  not  able  to  walk  long  distances.  As  she  does  not  have  a  driving  license,   she  is  currently  dependent  on  her  family  and  friends  to  transport  her  around  the  island.    

Over   the   past   years   she   tried   to   lose   weight,   for   example   by   dieting.   However,   it   was   difficult   to   maintain   her   diet   when   she   was   at   family   dinners,   parties   and   social   activities.   The   local  dishes  she  had  over  there  did  not  correspond  with  what  her  American  diet  prescribed  to  eat.   In  the  end,  instead  of  achieving  her  deeply  desired  weight  loss,  she  had  only  gained  weight.    

Mila’s  case  is  illustrative  for  many  people  who  struggle  with  obesity.  Her  case  shows  that   the   understanding   of   obesity   is   more   complex   than   the   single   explanation   of   a   disease-­‐like   phenomenon.  Her  body  size  also  affects  her  social  eating  practices  and  her  everyday  life  practices.  

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Paradoxically,   even   fighting   her   weight   affects   her   everyday   life   experiences   and   social   eating   practices.  

Mila  hopes  that  metabolic  surgery  helps  her  to  achieve  her  desired  weight  loss.  Metabolic   surgery  is  performed  in  Aruba’s  only  hospital  since  the  year  of  2002.  Back  in  that  year,  only  ten   patients   underwent   the   surgical   procedure.   They   lost   up   to   85%   of   their   “excess”   weight.   Nowadays,  on  a  population  of  102.000  citizens,  more  than  two  hundred  patients  per  year  undergo   metabolic  surgery.  Many  more  patients  are  subscribed  to  the  waiting  list  to  have  the  surgery  in   the   future.   Mila   has   also   subscribed.   Today,   she   is   in   the   waiting   room   because   she   has   an   appointment  with  the  doctor  to  have  her  weight  checked.  The  last  time  she  saw  him,  the  doctor   told  her  that  her  body  weight  is  135  kilograms.  The  doctor  calculated  that  she  is  able  to  lose  up  to   60  kilograms  through  a  gastric  bypass:  a  surgical  intervention  that  downsizes  her  stomach  from   approximately   500   millilitres   to   50   millilitres,   “the   size   of   a   kiwi”.   The   following   step   in   this   surgery   is   the   attachment   of   the   stomach   pouch   to   the   small   intestines.   However,   the   top   1,5   metres  of  the  small  intestines  are  skipped  in  the  re-­‐attachment  to  the  stomach.  These  first  metres   are   essential   for   glucose   uptake.   By   skipping   the   first   part   of   the   small   intestines   and   thus   reducing  nutrient  uptake,  a  successful  surgery  should  result  in  a  substantial  loss  of  weight.    

Metabolic   surgery   refers   to   any   kind   of   surgical   interventions   that   affects   metabolic   change.   The   gastric  bypass  is   the   most   common   surgery   practiced   in   Aruba.   Sometimes   patients   undergo  a  gastric  sleeve  mastectomy.  In  this  surgery  a  large  part  of  the  stomach  is  removed  with   the   major   difference   that   the   intestines   stay   untouched.   Currently,   the   ideas   about   the   effectiveness   of   metabolic   surgery   changed   from   initial   restriction   of   food   intake   to   changes   in   metabolism.    

From   a   biomedical   gaze,   metabolic   surgery   is   regarded   successful   when   physical   parameters  like  permanent  weight  loss  and  reduction  of  comorbidities  are  achieved  (for  example   the  reduction  of  diabetes  related  complaints)  (Chang  et  al.,  2014;  Crookes,  2006  &  Buchwald  et  al.,   2004).   Research   that   takes   into   account   life   after   metabolic   surgery,   however,   reveals   a   more   complex  account  of  when  and  why  surgery  may  or  may  not  be  considered  a  “success”.  Groven,  for   instance,   describes   Norwegian   patients   that   experienced   metabolic   surgery   as   life   changing,   difficult,   even   the   primary   source   that   worsened   their   quality   of   life   (Groven,   2010).   Wouters   stresses  that  Dutch  patients  may  feel  limited  in  their  daily  functioning  because  of  skin  abundance,   increased   diarrhoea   and   malodorous   flatulence   and   fatigue   (Wouters,   2010).   Ryan   and   Murray   have  written  personal  accounts  of  the  effects  after  undergoing  surgery  on  their  lives  that  caused   unwanted  transformations  in  their  social  lives,  such  as  changes  in  their  partner  relationships  or   increased  feelings  of  vulnerability  (Ryan,  2005;  Murray,  2013).    

While   the   biomedical   “success”   of   surgery   is   understood   in   terms   of   decrease   of   weight   and   reduction   of   comorbidities,   metabolic   surgery   may   in   medical   anthropological   terms   be  

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regarded  as  an  uncertain  cure1  (Throsby,  2012).  Patients  do  not  know  what  their  “transformation”   will  look  like  before  they  agree  to  undergo  surgery.  Karen  Throsby  researched  life  after  metabolic   surgery  in  the  United  Kingdom.  She  writes:  “Even  though  many  reach  a  “healthy”  weight,  for  some,   this   is   at   the   cost   of   ill-­‐health.   This   tension   problematizes   the   presumed   positive   relationship   between   health   and   slimness”,   that   many   patients   hope   to   reach   after   agreeing   with   surgery.   Especially  among  this  group  of  metabolic  patients  ambiguity  exists  about  what  is  good  health  and   what  is  not.  

Additionally,   but   not   less   important:   the   tension   between   social   and   biomedical   beliefs   about   weight   and   health   varies   tremendously   over   time   and   place.   These   beliefs   are   built   upon   historical,   cultural   and   economical   elements   that   are   specific   to   a   local   context.   In   my   research,   this  local  context  is  the  Aruban  culture  in  which  body  size  is  considered  a  reflection  of  health  on   the  one  side  and  illness  on  the  other  side.  Furthermore,  body  size  may  for  example  be  understood   differently  in  terms  of  prosperity/poverty  and  attractiveness/sloth.    

I  use  the  everyday  life  experiences  of  metabolic  patients  to  gain  insight  in  how  metabolic   surgery  is  understood  in  the  specific  local  context  of  Aruba.  Their  narratives  tell  us  what  it  is  like   to  live  with  1)  obesity  and  2)  metabolic  surgery  and  how  they  try  to  access  health  on  this  “heavy   island”.  I  refer  to  this  type  of  patient  information  as,  what  Jeanette  Pols  calls,  patient  knowledge.   This  is  a  kind  of  “expertise”  that  differs  from  medical  knowledge,  but  is  in  no  way  less  valuable   (Pols,   2013).   Their   everyday   experiences   render   how   metabolic   patients   try   to   embed   practical   and  medical  knowledge  into  their  daily  lives  in  order  to  live  with  their  changed  metabolism.    

In   this   thesis   I   explore   the   understanding   of   body   size,   obesity   and   health   from   the   perspective  of  Aruban  patients  who  either  undergo  or  underwent  metabolic  surgery.  My  goal  is   not  to  provide  a  critical  overview  of  obesity  and  metabolic  surgery.  My  aim  is  to  map  the  tensions   around   obesity   and   metabolic   surgery   that   are   specific   to   Aruba.   I   frame   my   informants   as   healthcare   experts   alongside   the   clinicians.   Having   the   improvement   of   health   as   their   mutual   goal,   clinicians   and   metabolic   patients   all   bring   their   own   kind   of   “expertise”   in   obesity   specific   health   care.   I   argue   that   the   tensions   in   their   understandings   of   body   size,   obesity   and   health   before  and  after  metabolic  surgery  may  provide  us  with  valuable  insights  that  may  contribute  to   the  improvement  of  obesity  specific  health  care  programs  on  Aruba.    

       

                                                                                                               

1  Anthropologist  Cassandra  White  has  introduced  the  concept  “uncertain  cure”  in  her  ethnography  about  living  with  

Leprosy  in  Brazil.  I  adopt  this  concept  drawing  upon  Karen  Throsby’s  interpretations  (2012).  She  used  the  concept  to   describe  metabolic  surgery  in  her  paper  “Obesity  surgery  and  the  management  of  excess:  exploring  the  body  multiple”  

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Thesis  outline    

This   thesis   will   take   the   reader   through   patient   experiences   as   they   undergo   metabolic   surgery.  Chapter  2  is  about  the  employed  methodology,  its  ethics,  data  analysis  and  limitations.  It   will  also  address  a  personal  reflection  on  the  fieldwork  and  data  collection  process.    

Before  I  discuss  and  interpret  the  empirical  data,  this  research  will  be  placed  in  context  by   outlining  the  main  bodies  of  social  scientific  literature  on  obesity  and  metabolic  surgery  that  have   informed  this  study  throughout.  This  outline  is  to  be  found  in  chapter  3.    

The   first   empirical   chapter   is   chapter   4.   In   this   chapter   I   provide   a   detailed   overview   of   Aruban   understandings   of   obesity   and   overweight,   which   are   specific   to   time,   location   and   sociocultural  elements.    

In  Chapter  5,  I  merge  the  narratives  of  patients  to  construct  the  line  of  a  fictional  ‘typical’   patient.   The   chapter   thus   traces   how   patients   start   to   problematize   their   body   weight,   aim   to   reduce  it,  and  ultimately  opt  for  metabolic  surgery.  

In  Chapter  6,  the  narrative  of  this  ‘typical’  patient  continues  after  she  underwent  surgery.   She   reflects   on   life   as   she   knew   it   when   she   identified   herself   as   obese   and   how   her   life   has   changed  through  surgery.  This  chapter  aims  to  give  insight  in  patient  experiences  after  metabolic   surgery.  

The  outcomes  of  the  empirical  research  will  be  summarized  in  the  conclusion  in  chapter  7.   This   chapter   also   includes   a   discussion   in   which   implications   for   practical   outcomes   are   presented.                                

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CHAPTER  2     METHODOLOGY,  ETHICS,  REFLEXIVITY    

2.1  Data  collection      

This   thesis   is   based   on   eleven   weeks   of   qualitative   ethnographic   research   conducted   on   Aruba  between  January  and  April  2016.  A  major  advantage  of  organising  fieldwork  abroad  is  the   enabling  of  analysis  of  everyday  routines  from  an  outsider  point  of  view.  “The  ethnographer,  as  a   stranger,  can  observe  the  minutiae  of  organizational  life  and,  through  analysis,  offer  an  account  of   ‘what  is  happening’”  (Green  &  Throrogood,  2014:  157).    

The   data   collection   started   in   the   primary   hospital   of   Aruba,   the   Horacio   E.   Oduber   Hospitaal.   This   prominent   building   is   located   on   the   outskirts   of   Oranjestad,   the   capital   of   the   island.   The   primary   location   of   the   hospital   has   a   capacity   to   house   400   patients.   Metabolic   patients   go   to   a   separate   ward   for   their   check-­‐ups,   approximately   200   meters   from   the   main   entrance.  This  surgical  ward  contains  two  small  waiting  rooms  and  four  offices  for  the  hospital’s   surgeons.  An  important  share  of  my  empirical  data  was  gathered  in  this  ward  through  participant   observation.  In  the  very  beginning  of  my  fieldwork  I  was  in  the  ward  for  approximately  four  to   five   days   per   week.   I   mostly   joined   check-­‐ups   with   patients   to   familiarize   with   the   language   (Papiamento)  and  the  consultations  to  access  metabolic  surgery.    

I   additionally   attended   information   sessions   where   patients   could   go   to   get   information   about  the  gastric  bypass  procedure.  The  surgeon  who  performed  metabolic  surgery  hosted  these   sessions.   Here   I   was   able   to   chat   with   many   patients   about   their   views   on   and   concerns   with   metabolic  surgery.  I  spent  my  lunch  break  in  the  hospital  with  the  doctors  and  the  administrative   staff.  Thus  I  was  able  to  observe  and  collect  information  by  active  participation  in  hospital  life.  The   active   participations   allowed   me   to   explore   both   the   patient’s   and   the   clinician’s   perspectives.   Furthermore,  I  always  made  sure  to  transcribe  and  write  out  field  notes  in  public  spaces.  Arubans   generally  like  to  chat,  so  by  working  in  café’s  and  the  library  in  the  hospital  I  had  lots  of  informal   conversations  thus  getting  a  sense  of  general  perceptions  of  eating,  health  and  weight.  

Furthermore,   I   formally   interviewed   16   patients   who   either   underwent   or   will   undergo   metabolic  surgery.  They  informed  me  about  their  lived  experiences  of  being  obese  and  opting  for   surgery.  These  interviews  were  recorded  and  transcribed  in  a  verbatim  and  lasted  approximately   90  minutes.  The  interviews  mostly  took  place  at  the  homes  of  the  informants  and  incidentally  in  a   clinical  setting  (i.e.  ward’s  waiting  room  or  surgeon’s  office).  Another  17  health  care  professionals   (ranging   from   hospital   staff,   psychologists   and   dieticians)   informed   me   about   the   availability   of   obesity  health  care.  Furthermore,  I  conducted  an  interview  with  the  chief  of  the  national  health   insurance  company.  Lastly  I  held  an  interview  with  the  minister  of  health.  These  two  interviewees   informed  me  about  the  island’s  obesity  politics.  Every  interview  was  recorded  and  took  place  at  

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the  office  of  the  professional.    All  informants  were  recruited  through  gatekeepers  in  the  field  (e.g.   the  governor  of  the  hospital,  a  prominent  socialite).  The  questions  I  asked  my  informants  were  the   same   among   patients   and   health   care   professionals.   They   covered   topics   of   having/treating   obesity  and  everyday  eating  experiences,  to  gain  insight  in  the  everyday  impact  of  obesity.  I  chose   to  follow  the  topics  of  interest  that  the  informants  brought  up,  to  “develop  their  own  account  on   the  issues  important  to  them”  (Green  &  Thorogood,  2011).    

In   addition   to   interviews   and   observations,   I   collected   all   the   available   literature   on   obesity   on   Aruba   that   I   could   find.   Earlier   Aruban   research   on   obesity   includes,   for   instance,   a   qualitative   study   on   eating   habits   (1994)   and   a   general   monitor   of   Aruban   Health   (2012).   Furthermore,  I  collected  the  documents  on  public  health  policies  that  were  publicly  available.  The   first  public  plan  dates  from  2009  and  was  written  under  supervision  of  the  minister  of  health  at   that   time,   dr.   Richard   Visser.   His   policy   is   maintained   until   the   day   of   today   by   the   financial   support  to  the  governance  of  Instituto  BIba  Saludabel  y  Activo  (IBISA,  institute  for  a  healthy  and   active  life),  which  is  the  governmental  institute  for  health  promotion.  

Finally,  I  have  used  auto-­‐ethnography  in  this  research.  Auto-­‐ethnography  is  described  as  a   method   and   way   of   reporting   where   the   researcher   reflects   upon   and   uses   her   experiences   to   understand  the  field  (Wall,  2008).  I  deemed  this  important,  as  before  this  research  I  worked  as  a   psychologist   in   a   Dutch   obesity   clinic.   I   thus   entered   the   field   with   my   own   norms   and   beliefs   about   eating   behaviour   and   health.   During   the   fieldwork   period   I   constantly   reflected   on   the   information  I  gathered  while  I  processed  the  information.    For  example,  one  of  the  questions  that  I   did   not   know   the   answer   to   was   why   obesity   rates   in   Aruba   are   higher   compared   to   other   Caribbean  islands.  I  have  let  my  search  for  ethnographic  data  be  guided  by  these  questions  during   my  access  to  the  field.  As  a  consequence,  my  research  project  transformed  from  an  initial  research   about  the  impact  of  metabolic  surgery  into  a  research  that  investigates  the  perception  of  obesity   on  Aruba.  

 

2.2  Data  analysis    

  Although   the   study   proposal   was   based   on   theoretical   frameworks   (i.e.   deductive   analysis),   the   eventual   presentation   of   results   in   this   thesis   was   primarily   derived   from   a   close   reading   of   the   data   (i.e.   inductive   analysis)   without   trying   to   fit   it   within   existing   theoretical   frameworks.  Thematic  content  analysis  was  applied  on  all  the  formal  and  informal  interviews.  The   transcriptions  were  manually  coded  and  organised  by  the  ethnographer,  according  to  four  major   themes  that  were  inductively  accomplished.  The  themes  were:  1)  norms  and  values  on  obesity,  2)   everyday   eating   practices   before   and   after   metabolic   surgery,   3)   healthy   living   in   practice   and   4)  

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self-­‐care  and  coping.  Results  of  the  analysis  with  respect  to  the  data  are  presented  in  chapter  4,  5   and  6  and  complemented  with  observations,  literature  analysis  and  personal  reflections.    

 

2.3  Ethics    

  The   research   proposal   on   which   this   research   is   based   was   officially   approved   by   the   University   of   Amsterdam   and   by   the   ethical   committee   of   education   of   the   HOH   (Dr.   Horacio   Oduber   Hospitaal).   I   have   very   kindly   received   reimbursement   of   research   expenses   from   the   hospital   for   the   exploitation   of   this   research.   However,   this   compensation   has   in   no   way   influenced  the  methodology,  research  objective  or  research  outcome  of  this  thesis.  

In   accordance   with   the   research   ethics   of   the   American   Association   of   Anthropologists   (AAA)  and  of  the  hospital,  the  main  principles  throughout  my  fieldwork  and  throughout  writing   this   thesis   were   informed   consent,   confidentiality   and   informant   privacy.   All   interviews   were   conducted   after   I   verbally   explained   the   agreement   of   informed   consent   and   possibility   to   withdraw   at   any   moment   without   any   consequences   for   the   to   be   received   healthcare.   For   the   short  conversations  I  had  in  cafes  and  the  library,  I  always  asked  permission  to  report  their  input   afterwards  and  I  was  never  refused  to  report  their  answers.  

Most   importantly,   I   ensured   my   informants   that   they   would   not   be   identified   by   their   names.   This   was   particularly   imperative   as   Aruba   is   a   small   island   where   everybody   knows   everybody.  Their  answers  contained  personal  information  to  the  extent  that  using  their  life  stories   as  an  illustrative  box  would  lead  to  violation  of  their  privacy.  Drawing  upon  this  given  fact,  I  chose   to   write   chapters   5   and   6   from   the   point   of   view   of   a   fictional   patient,   who   is   based   on   the   narratives  of  all  my  patient  informants.    

Whenever  I  noticed  that  my  participants  were  not  comfortable  in  discussing  in  Dutch  or   English,  I  called  in  someone  who  could  translate.  This  sometimes  led  to  interesting  conversations   in  which  I  was  able  to  include  the  translator  as  an  informant.  For  example,  in  one  of  my  interviews   the  partner  of  a  metabolic  patient  helped  me  to  translate  my  questions.  While  her  husband  was   enthusiastic   about   his   surgery,   she   gradually   expressed   her   discomfort   about   the   preparatory   procedures  her  husband  attended.  Although  her  husband  felt  prepared  to  undergo  surgery,  she  as   a  wife  felt  worried  about  what  was  going  to  happen  to  him  and  to  her  family  in  general.  In  cases   like  this,  I  additionally  asked  for  verbal  consent  to  register  the  accounts  of  those  who  translated.      

2.4  Reflexivity    

  At   the   very   onset   of   my   fieldwork   I   was   concerned   whether   a   person   with   a   BMI   (Body   Mass  Index)  of  20,5  kg/  m²  is  able  to  write  about  obesity.  I  wondered  whether  I  would  be  able  to  

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empathize  with  people  who  classify  themselves  as  obese.  Furthermore,  I  feared  that  my  posture   provokes  feelings  of  stigmatization  and  ‘othering’  among  persons  who  identify  themselves  as  fat.   However,   following   Deborah   Lupton   (2013),   everyone   is   caught   up   in   or   reacting   to   obesity   discourse,   whether   they   identify   themselves   as   obese   or   not.   “We   are   all   potentially   fat   people,   unless  we  take  steps  to  constantly  monitor  and  discipline  our  bodies”  

  I   have   worked   before   as   a   psychologist   in   an   obesity   clinic.   On   the   one   hand   I   feel   advantaged   as   I   have   seen   and   treated   many   obese   individuals,   I   can   easily   empathise   with   the   patients   and   relate   to   what   might   be   relevant   for   them.   On   the   other   hand,   my   previous   interactions  as  a  psychologist  were  geared  towards  diagnosing  and  treating  patients,  not  to  learn   from   them.   My   existing   knowledge   was   at   the   onset   dominated   with   medical/psychological   understandings   and   normative   judgments   about   obesity.   Therefore   I   ascertained   during   my   fieldwork   that   I   would   be   constantly   reflexive   of   my   own   understandings   to   actively   put   them   aside.   This   helped   me   to   fully   follow   and   understand   the   story   that   informants   told   me   about   obesity  and  metabolic  surgery.  

Only   after   I   entered   the   field,   I   realised   that   my   Dutch   origin   might   affect   the   data   collection  process.  Aruba  was  formerly  colonized  by  The  Netherlands  and  although  it  is  officially   independent  since  the  status  aparte  in  1986  (Aruba  Gobierno,  2016),  Aruba  is  until  today  under   Dutch   political   supervision   -­‐   which   for   example   leads   to   dependence   of   Dutch   accordance   on   political   decisions.   In   everyday   life,   the   island’s   history   with   The   Netherlands   is   noticeable   through  a  complex  relationship  between  native  Arubans  and  Dutch  inhabitants  (12%  of  the  total   population,   Dutch   expats   and   temporal   workers   not   included   (Aruba   Health   Monitor   2012:   27).   Inhabitants   who   completed   their   education   in   The   Netherlands   (either   Aruban   or   Dutch)   are   favoured   for   governmental   positions   and   accompanied   civil   benefits.   To   access   governmental   support   one   needs   to   apply   in   Dutch,   although   many   low-­‐educated   inhabitants   only   speak   Papiamento.  Aruba  has  two  major  political  parties,  and  one  of  them  (MEP,  Movimiento  Electoral   di  Pueblo)  currently  promotes  complete  separation  from  the  Kingdom  of  the  Netherlands.  While  I   was  doing  fieldwork,  I  realised  that  my  major  concern  should  not  lie  with  provoking  feelings  of   inferiority  at  the  informants’  side  because  of  my  body  size,  but  rather  because  of  my  nationality.  In   response,   to   enable   myself   to   open   conversations,   I   tried   to   learn   Papiamento,   familiarize   with   local  habits  and  food.  Furthermore,  it  helped  that  some  inhabitants,  whom  I  befriended,  became   gatekeepers,  expressing  their  trust  in  me  towards  their  relatives  and  friends.  

A   final   concern   is   how   to   describe   patients   with   a   large   body   size.   Following   Warin   and   Gunson   I   need   to   acknowledge   the   ways   in   which   language   operates   through   our   bodies   and   through  those  of  the  people  I  work  with  (Warin  &  Gunson,  2013).  Some  may  identify  with  being   obese,   while   others   may   not   identify   with   this   diagnosis.   In   this   thesis   I   refer   to   “obesity”   and   “being  obese”  when  I  discuss  the  medicalisation  of  body  weight.  This  generally  is  accompanied  by  

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associations   of   disease,   disciplining   the   body   and   moral   failure.   When   I   use   “large   bodies”   however,  I  describe  overweight  among  people  who  do  not  identify  themselves  as  obese  or  do  not   experience  weight-­‐related  complications.  By  separating  these  two  concepts,  I  distinguish  between   whether  people  think  of  obesity  as  a  problem  or  not.    

 

 

 

 

 

 

 

 

 

 

 

 

 

 

 

 

 

 

 

 

 

 

 

 

 

 

 

 

 

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CHAPTER  3     THEORETICAL  FRAMEWORK    

In  the  introduction  I  chose  to  present  the  case  of  Mila,  as  it  resembles  the  cases  of  many   other  Arubans.  She  is  a  striking  example  of  1)  a  person  with  severe  body  weight  who  feels  limited   by  it  and  2)  opts  for  a  medical  intervention  (metabolic  surgery)  to  redirect  her  life  to  achieve  what   she  considers  ‘healthy’:  a  life  that  is  not  impaired  by  her  weight.  In  this  chapter  I  will  elaborate  on   these   two   assumptions.   Furthermore,   I   will   provide   an   overview   on   relevant   social   scientific   readings  that  touch  upon  these  assumptions.  I  will  start  with  outlining  the  history  of  obesity  and   the   medicalization   of   large   bodies   from   a   social   science   perspective,   to   unravel   the   context   in   which  obesity  is  framed  today.  The  next  section  is  concerned  with  social  scientific  perspectives  on   this   growing   medicalization   of   body   weight.   In   the   following   section   I   discuss   the   sociocultural   understandings   of   overweight   and   obesity   in   general.   Here   I   show   that   large   bodies   are   not   necessarily   negatively   associated.   I   will   show   that   elements   like   time,   location   and   history   are   important  for  obesity  perceptions.  After  that,  I  will  touch  upon  metabolic  surgery  as  a  method  to   reduce   body   weight   and   I   will   outline   the   main   social   scientific   arguments   concerning   this   intervention.   Lastly,   I   bring   forward   that   every   geographical   location   needs   its   own   research   about  the  meaning  and  impact  of  obesity  and  metabolic  surgery.  

 

3.1  A  history  of  the  globesity  epidemic    

In  the  year  2000,  the  WHO  released  a  report  that  warned  against  a  worldwide  ‘globesity   epidemic’.   Their   choice   to   use   the   word   ‘epidemic’   triggers   images   of   associations   with   contamination,  disease  and  catastrophes  that  threaten  citizens  in  their  wellbeing  (Knutsen,  2015).     The   framing   of   obesity   as   a   disease-­‐like   phenomenon   (Chang   and   Christakis,   2002;   Gremillion,  2005;  Jutel,  2006;  Nicholls,  2013;  Felt  et  al.,  2014)  invites  for  medical  anthropological   deliberation.  Nowadays,  the  WHO  defines  obesity  as  “the  condition  of  abnormal  or  excessive  fat   accumulation  in  adipose  tissue,  to  the  extend  that  health  may  be  impaired”  (WHO,  2000).    

However,   instead   of   assessing   obesity   by   fat   accumulation,   obesity   is   in   Aruba   defined   according  to  the  assessment  of  BMI.  But  where  does  the  BMI  come  from  and  how  does  it  indicate  a   physical  state  in  which  body  tissue  threatens  health?  The  answer  lies  in  epidemiological  research.  

In  the  early  twentieth  century,  medical  research  found  that  increased  risk  of  mortality  was   associated   with   overweight   (Ulijaszek   &   Lofink,   2006).     With   the   goal   of   statisticians   and   epidemiologists   to   assess   health   risk   management,   the   need   for   tools   to   compare   body   weight   across   places   and   over   time   increased   (Hacking,   2007;   Fletcher,   2014).   Isabel   Fletcher,   in   her   history   of   development   of   BMI,   describes   how   over   the   years   several   tools   were   developed   to   assess   body   fatness.   The   tools   included   time-­‐consuming   measurements   of   the   abdomen,   under  

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water  weighing,  body  imaging  through  X-­‐ray,  ultrasound  and  anthropometry,  of  which  BMI  is  the   most   common   one.   Ultimately,   the   BMI   was   widely   adopted   as   the   standard   measure   to   assess   body   fatness,   because   the   upper   end   of   body   weight   distribution   corresponded   with   increased   risk   of   mortality   and   chronic   disease:   coronary   heart   disease,   high   blood   pressure,   stroke   and   diabetes   II   (WHO,   2000),   but   also   because   of   its   user   friendliness   and   low   assessment   costs   (Hacking,  2007).  Although  it  was  never  meant  to  apply  to  individual  assessment,  BMI  has  evolved   into  the  preliminary  tool  that  is  used  today  to  classify  obesity.  The  categories  currently  range  from   underweight   (<18,5   kg/m²),   normal   weight   (18,5-­‐25   kg/m²),   to   overweight   (25-­‐30   kg/m²)   and   obesity  (>30  kg/m²).  

Classifying  weight  creates  insight  in  who  is  prone  to  develop  weight-­‐related  disease  and   who  is  not.  The  French  philosopher  Michel  Foucault  introduced  the  term  biopower  for  this  process   of  classification.  Biopower  refers  to  practices  in  which  epidemiology,  statistics,  demography  and   technical  information  about  health  and  illness  among  populations  may  be  used  to  achieve  political   goals  (Rabinow  &  Rose,  2003).  Medical  information  shapes  what  is  considered  “normal”  and  what   is   “abnormal”   or   “deviant”   in   a   social   sense.   In   the   case   of   obesity,   this   means   that   through   medical,  popular  and  governmental  discourses,  obese  individuals  are  encouraged  to  lose  weight   until  they  reach  the  normalized  BMI  range  and  to  keep  their  weight  lowered  to  avoid  health  risks.   The   classification   of   weight   further   provides   information   on   who   is   at   risk   to   develop   comorbidities   and   who   will   be   at   risk   to   consume   costly   healthcare   (which   is   an   expensive   procedure   for   the   state)   and   who   is   not.   These   statements   are   political   as   they   capture   assumptions  on  how  citizens  should  be  to  become  efficient  and  burden  free  for  the  state.  The  term   governmentality,  also  coined  by  Foucault,  describes  modern  states’  regulation  of  the  individual  to   reduce  risk  situations  that  threaten  the  productivity  of  the  population  as  a  whole.  It  represents  a   modern  view  of  health  regulation  that  takes  place  when  nations  moralize  and  direct  citizens  by   influencing   their   self-­‐care   (Foucault   et   al.,   1991).     In   the   Western   neoliberal   society2,   governmentality   led   to   a   focus   on   individuals’   responsibility   for   their   own   health   (Guthman   &   DuPuis,  2006;  Knutsen,  2012).  Hence,  the  obese  individual  is  encouraged  to  take  responsibility  for   controlling   his/her   body   weight   with   the   ultimate   goal   to   reduce   (assumed   inevitable)   future   health  risks.            

                                                                                                               

2  I  refer  to  neoliberal  society  as  a  social  environment  that  attempts  “to  tear  down  what  its  adherents  considered  

restraints  to  capital  accumulation”  (Guthman  and  Dupuis,  2006:  441).  Obesity,  in  this  definition,  is  regarded  as  a   limitation  for  optimal  development  of  capitalism.  For  example,  obesity  is  reducing  work  related  productiveness   (Murphy,  2004)  and  it  is  problematic  for  flight  companies  in  terms  of  fuel  costs  (Yee,  2004).  

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3.2  One  size  does  not  fit  all    

BMI  has  evolved  into  a  simple  tool  to  assess  weight  that  is  medically  deemed  “normal”  and   “abnormal”.   However,   this   indicator   has   it   shortcomings   to   approximate   health   impairment   through   body   weight.   One   of   the   major   flaws   of   BMI   as   a   classification   tool   is   its   inability   to   distinguish  between  bodily  tissue  distributions  that  vary  over  populations.  For  example,  research   showed  that  BMI  and  fatness  do  not  correspond  well  among  Chinese  populations  (Li  et  al.,  2002).   Furthermore,   the   use   of   BMI   cut-­‐off   standards   as   classification   of   obesity   among   children   is   problematic  because  of  altered  ratios  of  body  tissue  (Cole  et  al.,  2000).  These  studies  and  many   more   show   that   a   certain   weight   range   does   not   necessarily   correspond   with   increased   health   risks.    

Not   only   BMI   has   been   criticized,   obesity   itself   is   also   subject   of   debate.   The   Western   medicalisation   of   obesity   as   a   dangerous   health   status   resulted   in   associations   with   gluttony,   sloth,  lack  of  self-­‐discipline  and  something  which  individuals  chose  to  “let”  happen  (Knutsen  et  al.,   2012;  Guthman  &  DuPuis,  2006;  Greenhalgh,  2015).  Driven  by  a  concern  with  internalisation  of   stigma  and  following  eating  disorders,  feminist  scholars  have  protested  against  the  moral,  cultural   and  aesthetical  convictions  that  favour  thinness  among  females.  They  unravel  the  functioning  of   discourses  on  obesity  as  war  on  large  bodies,  which  is  covered  under  a  medically  substantiated   message  (Greenhalgh,  2015;  Bordo,  1993).    

The   Health   At   Every   Size   movement   (HAES)   presents   a   slightly   different   point   of   view.   Their  understanding  of  obesity  bridges  the  gap  between  medical  concerns  about  the  link  between   BMI   and   health   on   the   one   side,   and   feminists’   claims   about   the   cultural   war   on   obesity   on   the   other  side.  Members  of  HAES  question  whether  space  exists  for  various  opinions  in  ‘the  obesity   debate’,   which   is   au   courant,   dominated   by   “medically   proven”   arguments   against   fat.   Relating   themselves  with  fatness  rather  than  with  obesity,  HAES-­‐members  reject  moral  condemnation  that   is   associated   with   large   bodies.   Their   main   concern   is   to   extend   the   obesity   debate   with   the   intention  to  disconnect  body  size  from  disease3  (Rich,  Lee  &  Aphramor,  2011).  

The  social  informed  criticism  on  obesity  and  body  size  is  important  for  this  research  as  it   outlines  the  paradoxes  in  discourses  about  body  weight  and  health.  For  example,  BMI  is  now  used   to   assess   risks   on   health   impairments   due   to   “excess”   weight   over   populations.   However,   these   risks   are   impossible   to   translate   directly   to   the   lives   of   individual   persons   who   identify   themselves  as  obese.  Likewise,  the  experience  of  being  sick  cannot  directly  be  translated  to  body   weight.  By  outlining  these  discourses,  I  stress  that  the  biomedical  explanation  of  obesity  that  link   health   experiences   to   “excess”   weight   is   a   one-­‐sided   explanation   of   a   phenomenon   that   may   be  

                                                                                                               

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explained  in  various  alternative  ways.  We  need  to  take  this  into  account  when  we  want  to  learn  of   patients’  health  experiences.  

 

3.3  Conceptualizing  the  body    

  In  the  previous  sections  I  first  outlined  biomedical  understandings  of  obesity.  Secondly,  I   provided  an  overview  of  the  main  bodies  of  social  understandings  of  obesity.  Furthermore,  locally   specific   elements   like   differences   in   culture,   economic/social   status   and   food   access   all   have   a   dominant   share   in   shaping   body   weight   and   (aesthetic)   bodily   perceptions.   Thus,   these   locally   specific   elements   shape   various   perceptions   of   obesity   over   time,   place   and   social   meaning   making  (Garth,  2013).      

That   obesity   in   local   socio-­‐material   contexts   may   take   on   quite   distinct   and   surprising   meanings,  is  particularly  evident  in  the  work  of  anthropologist  Jessica  Hardin.  She  discusses  the   Samoan   understanding   of   obesity   as   an   embodied   form   of   Mana4,   a   divine   interconnectivity   between   supernatural   forces   and   the   village   chief.   Corpulence   here   is   the   physical   proof   of   presence   of   divinity   (Hardin,   2013).   Anne   Becker   describes   obesity   as   a   Fijian   protection   mechanism   against   macake,   an   illness   explanatory   model   that   is   marked   by   lack   of   appetite   (Becker,   1995).   Eileen   Anderson-­‐Fye,   in   turn,   shows   how   in   Belize,   ‘curves’,   regardless   of   body   size,   are   associated   with   beauty,   attractiveness   and   fertility   (Anderson-­‐Fye,   2004).   Alexandra   Brewis,   in   her   geographical   assessment   of   body   norms,   outlines   how   Tanzanians   wield   a   fat-­‐ neutral   consensus   that   hence   does   not   result   in   fat   stigma.   However,   Brewis   also   points   to   the   worldwide  migration  of  Western  body  ideals.  She  shows,  for  example,  how  as  a  result,  Mexicans   and  American  Samoans  wield  both  positive  and  negative  fat  conceptions  at  the  same  time:  on  the   one  hand,  they  think  of  fatness  as  a  sign  of  good  caregivers,  and  on  the  other  hand  they  adhere  to   Western   medicalized   understandings   of   fatness   as   health-­‐threatening     (Brewis   et   al.,   2011).   Becker  also  found  a  transition  of  ideal  body  conceptions  among  Fijians  that  shifted  in  only  a  few   decades  from  corpulent  to  slim  (Becker,  1995).  She  writes:  “The  fluidity  of  body  weight  ideals  is   neither  unique  to  Fiji  nor  historically  extraordinary”  Indeed,  Americans  have  undergone  the  same   transition   in   body   ideals   in   the   twentieth   century,   as   Susan   Bordo   points   out   in   her   book   “Unbearable   Weight”   (Bordo,   1993).   Nowadays,   other   geographical   areas   follow:   the   popular   discourse  that  links  large  bodies  to  sickness  becomes  increasingly  prevalent.  Likewise,  throughout   this   thesis   it  will  become  clear  that  Aruba’s   local  understandings   of   obesity   and   overweight   are   subject  to  change  as  well.  

   

                                                                                                               

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