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Quality Indicators for Palliative Care from an international perspective
de Roo, M.L.A.
2015
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de Roo, M. L. A. (2015). Quality Indicators for Palliative Care from an international perspective.
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Quality Indicators
for Palliative Care
from an international perspective
The research presented in this thesis was conducted within the EMGO+ Institute for Health and Care Research, Department of Public and Occupational Health of the VU University Medical Center, Amsterdam, the Netherlands.
Financial support for the research included in this thesis came from:
The EURO IMPACT project, European Intersectorial and Multidisciplinary Palliative Care Research Training, funded by the European Union Seventh Framework Programme FP7/2007-2013 [grant agreement n° 264697]
The Flemish government agency for Innovation by Science and Technology [SBO IWT nr. 100036] and [SBO IWT nr. 050158]
The Italian Ministry of Health [Integrated Oncology Project n°6, years 2008-2011] The Autonomous Community of Castilla y León and Comunitat Valenciana, Spain The Netherlands Organisation for Scientific Research [NWO, the Hague; Veni
916.66.073]
The Netherlands Organisation for Health Research and Development (ZonMw), [grant number 1151.0001]
The VU University Medical Center, EMGO Institute for Health and Care Research, Department of General Practice & Elderly Care medicine, and the Department of Public and Occupational Health, Amsterdam, the Netherlands
Financial support for printing this thesis was kindly provided by the VU university, the EMGO+ Institute and the Vrije Universiteit Brussel.
ISBN 978-94-6108-896-3 Lay-out: Maaike De Roo
Cover design: Eva Bolt and Maaike De Roo
Printed by: Gildeprint Drukkerijen, Enschede, the Netherlands © 2014, Maaike De Roo, Koersel, Belgium
No part of this thesis may be reproduced or transmitted in any form or by any means, electronic or mechanical, including photocopy, recording or any information storage or retrieval system, without prior written permission of the copyright owner.
VRIJE UNIVERSITEIT
Quality Indicators for Palliative Care
from an international perspective
ACADEMISCH PROEFSCHRIFT ter verkrijging van de graad Doctor aan
de Vrije Universiteit Amsterdam, op gezag van de rector magnificus prof.dr. F.A. van der Duyn Schouten,
in het openbaar te verdedigen ten overstaan van de promotiecommissie
van de Faculteit der Geneeskunde op vrijdag 6 maart 2015 om 13.45 uur
in de aula van de universiteit, De Boelelaan 1105
door
The research presented in this thesis was conducted within the EMGO+ Institute for Health and Care Research, Department of Public and Occupational Health of the VU University Medical Center, Amsterdam, the Netherlands.
Financial support for the research included in this thesis came from:
The EURO IMPACT project, European Intersectorial and Multidisciplinary Palliative Care Research Training, funded by the European Union Seventh Framework Programme FP7/2007-2013 [grant agreement n° 264697]
The Flemish government agency for Innovation by Science and Technology [SBO IWT nr. 100036] and [SBO IWT nr. 050158]
The Italian Ministry of Health [Integrated Oncology Project n°6, years 2008-2011] The Autonomous Community of Castilla y León and Comunitat Valenciana, Spain The Netherlands Organisation for Scientific Research [NWO, the Hague; Veni
916.66.073]
The Netherlands Organisation for Health Research and Development (ZonMw), [grant number 1151.0001]
The VU University Medical Center, EMGO Institute for Health and Care Research, Department of General Practice & Elderly Care medicine, and the Department of Public and Occupational Health, Amsterdam, the Netherlands
Financial support for printing this thesis was kindly provided by the VU university, the EMGO+ Institute and the Vrije Universiteit Brussel.
ISBN 978-94-6108-896-3 Lay-out: Maaike De Roo
Cover design: Eva Bolt and Maaike De Roo
Printed by: Gildeprint Drukkerijen, Enschede, the Netherlands © 2014, Maaike De Roo, Koersel, Belgium
No part of this thesis may be reproduced or transmitted in any form or by any means, electronic or mechanical, including photocopy, recording or any information storage or retrieval system, without prior written permission of the copyright owner.
VRIJE UNIVERSITEIT
Quality Indicators for Palliative Care
from an international perspective
ACADEMISCH PROEFSCHRIFT ter verkrijging van de graad Doctor aan
de Vrije Universiteit Amsterdam, op gezag van de rector magnificus prof.dr. F.A. van der Duyn Schouten,
in het openbaar te verdedigen ten overstaan van de promotiecommissie
van de Faculteit der Geneeskunde op vrijdag 6 maart 2015 om 13.45 uur
in de aula van de universiteit, De Boelelaan 1105
door
promotoren: prof.dr. A.L. Francke prof.dr. L.H.J. Deliens
prof.dr. N. Van Den Noortgate
CONTENTS
Chapter 1 General Introduction 7
PART 1 Existing quality indicators for palliative care 21 Chapter 2 Quality indicators for palliative care: update of a
systematic review 23
PART 2 The use of quality indicators in cross-country
comparisons 121
Chapter 3 Actual and preferred place of death of home-dwelling patients in four European countries: making sense of quality indicators
123
Chapter 4 Hospitalizations of cancer patients in the last month of life: quality indicator scores reveal large variation between four European countries in a mortality follow-back study
145
PART 3 Quality indicators for palliative care for residents
with dementia in long-term care facilities 161 Chapter 5 When do people with dementia die peacefully? An
analysis of data collected in long-term care settings 163 Chapter 6 Physical and psychological distress are related to dying
peacefully in residents with dementia in long-term care facilities
183
Chapter 7 General Discussion 199
Summary 219
Samenvatting 225
About the author 231
About EURO IMPACT 233
List of Publications 235
