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University of Groningen Self-reported health status after solid-organ transplantation Shahabeddin Parizi, Ahmad

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University of Groningen

Self-reported health status after solid-organ transplantation

Shahabeddin Parizi, Ahmad

DOI:

10.33612/diss.144702130

IMPORTANT NOTE: You are advised to consult the publisher's version (publisher's PDF) if you wish to cite from it. Please check the document version below.

Document Version

Publisher's PDF, also known as Version of record

Publication date: 2020

Link to publication in University of Groningen/UMCG research database

Citation for published version (APA):

Shahabeddin Parizi, A. (2020). Self-reported health status after solid-organ transplantation: The development and application of an innovative assessment method. University of Groningen. https://doi.org/10.33612/diss.144702130

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Self-reported health status after

solid-organ transplantation

The development and application

of an innovative assessment method

Ahmad Shahabeddin Parizi

2020

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Financial support to perform the studies and publishing of this thesis was provided by Research Institute SHARE, University Medical Center Groningen, University of Groningen, The Netherlands.

Author: Ahmad Shahabeddin Parizi Cover design: Ahmad Shahabeddin Parizi

Layout: Ahmad Shahabeddin Parizi, Jorrit Oosterhof, and Femke Oosterhof Printed by: ProefschriftMaken

Title pages of the chapters designed by Ahmad Shahabeddin Parizi; illustrations are inspired by walls of Arg-e Bam in Kerman and Persian column.

Copyright © Ahmad Shahabeddin Parizi, 2020. All rights reserved. No part of this thesis may be reproduced, stored in a retrieval system, or transmitted in any form by any means, without prior written permission of the author.

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Self-reported health status

after solid-organ transplantation

The development and application

of an innovative assessment method

PhD thesis

to obtain the degree of PhD at the University of Groningen

on the authority of the Rector Magnificus Prof. C. Wijmenga

and in accordance with the decision by the College of Deans. This thesis will be defended in public on Tuesday 1 December 2020 at 9.00 hours

by

Ahmad Shahabeddin Parizi

born on 16 August 1987 in Tehran, Iran

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Supervisors

Dr. P. F. M. Krabbe Prof. S. J. L. Bakker Prof. E. Buskens

Co-supervisor

Dr. K. M. Vermeulen

Assessment Committee

Prof. A. V. Ranchor Prof. D. Parkin Prof. S. P. Berger

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Paranymphs

F. Oosterhof A. Tuvdendorj

For my father, mother, sister, and brother

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Contents

Chapter 1

General introduction 9

Chapter 2

The value of PROMs 19

Chapter 3

Patient-reported health outcomes in long-term lung transplantation survivors:

A prospective cohort study 29

Chapter 4

A scoping review of key health items in self-report instruments used among

solid-organ transplant recipients 49

Chapter 5

Health items with a novel patient-centered approach provided information for preference-based transplant outcome measure 77 Chapter 6

Health-related quality of life in solid-organ transplant recipients: First results of a

novel ePROM (TXP) 97

Chapter 7

General discussion 115

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