University of Groningen
Caregiving experiences of informal caregivers
Oldenkamp, Marloes
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2018
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Oldenkamp, M. (2018). Caregiving experiences of informal caregivers: The importance of characteristics of
the informal caregiver, care recipient, and care situation. Rijksuniversiteit Groningen.
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Caregiving experiences of informal caregivers
The importance of characteristics of the informal caregiver,
care recipient, and care situation
COLOFON
Oldenkamp, M.
Caregiving experiences of informal caregivers. The importance of characteristics of the informal caregiver, care recipient, and care situation
ISBN 978-94-034-0438-7 (printed version) 978-94-034-0437-0 (digital version) Copyright © M. Oldenkamp, 2018
All rights reserved. No part of this thesis may be reproduced, stored in a retrieval system, or transmitted in any form by any means, without permission of the author or, when appropriate, from the publishers of the publications.
Cover photo: Alexander van Wolferen
Cover design: Alexander van Wolferen; Ridderprint BV, Ridderkerk
Lay out: Marloes Oldenkamp
Printed by: Ridderprint BV, Ridderkerk
The printing of this thesis was financially supported by the Graduate School of Medical Sciences SHARE, University Medical Center Groningen, University of Groningen.
Caregiving experiences of informal caregivers
The importance of characteristics of the informal caregiver,
care recipient, and care situation
Proefschrift
ter verkrijging van de graad van doctor aan de
Rijksuniversiteit Groningen
op gezag van de
rector magnificus prof. dr. E. Sterken
en volgens besluit van het College voor Promoties.
De openbare verdediging zal plaatsvinden op
woensdag 14 maart 2018 om 14.30 uur
door
Marloes Oldenkamp
geboren op 26 juli 1986
COLOFON
Oldenkamp, M.
Caregiving experiences of informal caregivers. The importance of characteristics of the informal caregiver, care recipient, and care situation
ISBN 978-94-034-0438-7 (printed version) 978-94-034-0437-0 (digital version) Copyright © M. Oldenkamp, 2018
All rights reserved. No part of this thesis may be reproduced, stored in a retrieval system, or transmitted in any form by any means, without permission of the author or, when appropriate, from the publishers of the publications.
Cover photo: Alexander van Wolferen
Cover design: Alexander van Wolferen; Ridderprint BV, Ridderkerk
Lay out: Marloes Oldenkamp
Printed by: Ridderprint BV, Ridderkerk
The printing of this thesis was financially supported by the Graduate School of Medical Sciences SHARE, University Medical Center Groningen, University of Groningen.
Caregiving experiences of informal caregivers
The importance of characteristics of the informal caregiver,
care recipient, and care situation
Proefschrift
ter verkrijging van de graad van doctor aan de
Rijksuniversiteit Groningen
op gezag van de
rector magnificus prof. dr. E. Sterken
en volgens besluit van het College voor Promoties.
De openbare verdediging zal plaatsvinden op
woensdag 14 maart 2018 om 14.30 uur
door
Marloes Oldenkamp
geboren op 26 juli 1986
Promotores
Prof. dr. R.P. Stolk
Prof. dr. M. Hagedoorn
Prof. dr. R.P.M. Wittek
Copromotor
Dr. N. Smidt
Beoordelingscommissie
Prof. dr. S.E.J.A. de Rooij
Prof. dr. A. Liefbroer
Prof. dr. M.I. Broese van Groenou
Paranimfen
Jisca S. Kuiper
Jacobien Niebuur
Promotores
Prof. dr. R.P. Stolk
Prof. dr. M. Hagedoorn
Prof. dr. R.P.M. Wittek
Copromotor
Dr. N. Smidt
Beoordelingscommissie
Prof. dr. S.E.J.A. de Rooij
Prof. dr. A. Liefbroer
Prof. dr. M.I. Broese van Groenou
Paranimfen
Jisca S. Kuiper
Jacobien Niebuur
TABLE OF CONTENTS
Chapter 1 General introduction 9
Chapter 2 The Lifelines Cohort Study: a data source available for studying informal 23 caregivers’ experiences and the outcomes of informal caregiving
Chapter 3 Survey nonresponse among informal caregivers: effects on the presence 41 and magnitude of associations with caregiver burden and satisfaction
Chapter 4 Subjective burden among spousal and adult-child informal caregivers of 61 older adults: results from a longitudinal cohort study
Chapter 5 The impact of older person’s frailty on the care-related quality of life of 89 their informal caregiver over time: results from the TOPICS-MDS project
Chapter 6 Positive and negative caregiving experiences: the role of the quality of 117 the informal caregiver-care recipient relationship and intrinsic caregiving
motivations
Chapter 7 Combining informal care and paid work: the use of work arrangements by 147 working adult-child caregivers in the Netherlands
Chapter 8 General discussion 169
Summary 191
Samenvatting 197
About the author 203
Dankwoord 207
TABLE OF CONTENTS
Chapter 1 General introduction 9
Chapter 2 The Lifelines Cohort Study: a data source available for studying informal 23 caregivers’ experiences and the outcomes of informal caregiving
Chapter 3 Survey nonresponse among informal caregivers: effects on the presence 41 and magnitude of associations with caregiver burden and satisfaction
Chapter 4 Subjective burden among spousal and adult-child informal caregivers of 61 older adults: results from a longitudinal cohort study
Chapter 5 The impact of older person’s frailty on the care-related quality of life of 89 their informal caregiver over time: results from the TOPICS-MDS project
Chapter 6 Positive and negative caregiving experiences: the role of the quality of 117 the informal caregiver-care recipient relationship and intrinsic caregiving
motivations
Chapter 7 Combining informal care and paid work: the use of work arrangements by 147 working adult-child caregivers in the Netherlands
Chapter 8 General discussion 169
Summary 191
Samenvatting 197
About the author 203
Dankwoord 207
