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Quality of care and monitoring in paediatric end stage renal disease
van Huis, M.
Publication date
2016
Document Version
Final published version
Link to publication
Citation for published version (APA):
van Huis, M. (2016). Quality of care and monitoring in paediatric end stage renal disease.
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Maik
e v
an Huis
-
Quality of care and monitoring in paediatric end stage renal disease
UITNODIGING
voor het bijwonen van de openbare verdediging van
het proefschrift
Quality of care and monitoring in paediatric
end stage renal disease op 8 september 2016 om 14:00 in de Agnietenkapel te
Amsterdam
Maike van Huis
Wieringenpad 2 3826 CT Amersfoort m.vanhuis@amc.nl 06-28804222 Paranimfen Lidwien Tjaden 06-22789982 Jolien van Huis
06-18608576
Quality of Care
and Monitoring
in Paediatric End
Stage Renal Disease
2
Quality of care and monitoring in paediatric end stage renal disease
PhD thesis, University of Amsterdam, The Netherlands Cover and layout: Rens Dommerholt, Persoonlijk Proefschrift Printing: Ipskamp
Copyright M. van Huis
All rights reserved. No part of this thesis may be reproduced, stored in a retrieval system, or transmitted in any form or by any means without prior permission from the author. Parts of this thesis are performed as part of the RICH-Q project, which is mainly funded by the Dutch Kidney Foundation. Additional funding was provided by Astellas, Ferring Pharmaceuticals, Sanofi, Roche and Shire. The funders had no role in the design and conduct of the project, data gathering or interpretation, or in the preparation of the manuscript. We are grateful to all patients and the participating centers in the RICH-Q study.
3
Quality of care and monitoring
in paediatric end stage renal disease
ACADEMISCH PROEFSCHRIFT
ter verkrijging van de graad van doctor aan de Universiteit van Amsterdam op gezag van de Rector Magnificus
prof. dr. ir. K.I.J. Maex
ten overstaan van een door het College voor Promoties ingestelde commissie, in het openbaar te verdedigen in de Agnietenkapel
op donderdag 8 september 2016, te 14:00 uur door
Maike van Huis
4 Promotiecommissie
Promotor: Prof. Dr. J.B. van Goudoever Universiteit van Amsterdam Co-promotores: Dr. J.W. Groothoff Universiteit van Amsterdam
Dr. J. H. van der Lee Universiteit van Amsterdam Overige leden: Prof. Dr. F.J. Bemelman Universiteit van Amsterdam
Prof. Dr. N.A. Blom Universiteit van Amsterdam Prof. Dr. B. Hoppe Universität Bonn
Prof. Dr. K.J. Jager Universiteit van Amsterdam Prof. Dr. M. Maas Universiteit van Amsterdam Dr. M.R. Lilien Universiteit Utrecht
5
CONTENT
Chapter 01 General introduction, aim and outline of this thesis
Part I Quality of care
Chapter 02 Policy variation in donor and recipient status in 11 paediatric renal transplantation centres.
Pediatric Nephrology 2013 Jun;28(6):951-7.
Chapter 03 Considerable variations in growth hormone policy and prescription in paediatric end-stage renal disease across European countries-a report from the ESPN/ERA-EDTA registry.
Nephrology Dialysis Transplantation 2016 April;31(4)609-619
Chapter 04 Epidemiology and management of hypertension in paediatric and young adult kidney transplant recipients in The Netherlands
Nephrology Dialysis Transplantation 2016 Epub ahead of print
Part II Monitoring of care
Chapter 05 Low bone mineral density measured with DXA does not predict bone disease in adulthood after childhood renal failure.
BMC Nephrology - submitted
Chapter 06 Impaired Longitudinal Deformation measured by Speckle Tracking Echocardiography in Children with End-Stage Renal Disease. Pediatric Nephrology 2016 May 17. Ahead of print.
Part III Evaluation of quality of care
Chapter 07 The RICH-Q study: A collaborative network on paediatric end-stage renal disease and quality of care.
British Medical Journal - Quality and Safety - submitted Part IV General discussion
Part V English summary
Nederlandse samenvatting Portfolio Publications List of abbreviations Dankwoord Curriculum Vitae
