Cover Page
The handle
https://hdl.handle.net/1887/3178044
holds various files of this Leiden
University dissertation.
Author: Boer, M.C. den
Title: Improving neonatal resuscitation: ethical aspects
Issue Date: 2021-05-20
IMPROVING NEONATAL RESUSCITATION: ETHICAL ASPECTS
AN EMPIRICAL STUDY ON CONSENT FOR DELIVERY ROOM STUDIES AND RECORDING AND REVIEWING NEONATAL RESUSCITATION
Cover & Lay-out: Publiss | www.publiss.nl Print: Ridderprint | www.ridderprint.nl
© Copyright 2021: Maria den Boer, Leiden, The Netherlands.
All rights reserved. No part of this publication may be reproduced, stored in a retrieval system, or transmitted in any form or by any means, electronic, mechanical, by photocopying, recording, or otherwise, without the prior written permission of the author.
The research described in this thesis was supported by grants of the Leiden University Foundation and the NWO innovational research incentives scheme (recipient A.B. te Pas: VIDI 91716428).
The printing of this thesis was financially supported by Willem-Alexander Kinder-Ziekenhuis Leiden and Universiteitsbibliotheek Leiden.
IMPROVING NEONATAL RESUSCITATION: ETHICAL ASPECTS
Proefschrift
ter verkrijging van
de graad van doctor aan de Universiteit Leiden, op gezag van rector magnificus prof.dr.ir. H. Bijl, volgens besluit van het college voor promoties
te verdedigen op donderdag 20 mei 2021 klokke 16:15 uur
door
Maria Christiane den Boer geboren te Breda
Prof. dr. M.C. de Vries Copromotor: Dr. M. Houtlosser Leden promotiecommissie: Prof. dr. E.H.H.M. Rings
Prof. dr. A.A.E. Verhagen (University of Groningen,
the Netherlands)
Prof. dr. M. van Dijk (Erasmus University
Rotterdam, the Netherlands)
Dr. R. van der Graaf (Utrecht University,
As we tell stories about the lives of others, we learn how to imagine what another creature might feel in response to various events. At the same time, we identify with
the other creature and learn something about ourselves.
Martha Nussbaum
(In: Take my advice: Letters to the next generation from people who know a thing or two. JL Harmon 2002, 177)
TABLE OF CONTENTS
PART 1
PREFACE AND GENERAL INTRODUCTION
9
Preface 11
General introduction 17
PART 2
CONSENT FOR DELIVERY ROOM STUDIES
35
Chapter 1 Deferred consent for delivery room studies: the providers’perspective
37 Chapter 2 Consent for delivery room studies: what can be learned from
perceptions of parents
55 Chapter 3 Deferred consent for the enrolment of neonates in delivery
room studies – strengthening the approach
73
PART 3
RECORDING AND REVIEWING NEONATAL
RESUSCITATION
89
Chapter 4 Ethical dilemmas of recording and reviewing neonatalresuscitation
91 Chapter 5 Benefits of recording and reviewing neonatal resuscitation:
the providers’ perspective
109 Chapter 6 Improving the quality of provided care: lessons learned from
auditing neonatal stabilization
129 Chapter 7 Reviewing recordings of neonatal resuscitation with parents:
a qualitative study
143
PART 4
DISCUSSION AND SUMMARY
161
General discussion 163
Summary 189
