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University of Groningen An e-health driven national healthcare ecosystem Schiza, Eirini

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University of Groningen

An e-health driven national healthcare ecosystem

Schiza, Eirini

IMPORTANT NOTE: You are advised to consult the publisher's version (publisher's PDF) if you wish to cite from it. Please check the document version below.

Document Version

Publisher's PDF, also known as Version of record

Publication date: 2018

Link to publication in University of Groningen/UMCG research database

Citation for published version (APA):

Schiza, E. (2018). An e-health driven national healthcare ecosystem. University of Groningen.

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Downloaded from the University of Groningen/UMCG research database (Pure): http://www.rug.nl/research/portal. For technical reasons the number of authors shown on this cover page is limited to 10 maximum.

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Contents

List of figures Acknowledgements

1 Introduction 1

1.1 Background . . . 1

1.2 European Union Context . . . 3

1.3 Scope and Objectives . . . 6

1.4 Thesis organization . . . 8

2 A Patient Centered Electronic Health System: An Example for Cyprus 13 2.1 Introduction . . . 13

2.2 Issues to be considered for implementing EHR systems: Maturity Level 14 2.3 The example of Cyprus . . . 15

2.4 Discussion . . . 16

3 A Patient Centered Electronic Health eHealth System Development 19 3.1 Introduction . . . 19

3.2 Methods and Objectives . . . 23

3.3 Application to Cyprus . . . 27

3.4 Discussion . . . 32

4 Proposal for an eHealth Based Ecosystem Serving National Healthcare 35 I Introduction . . . 35

II Foundations of a National eHealth System . . . 38

III Method . . . 42

IV The Patient-Centered Approach . . . 44

V Technical Framework . . . 45

A EHR Summary Standards . . . 45

B Standardization for Storage Retrieval and Communication . . 46

C Technical solutions and tools developed . . . 49

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VI Financial Framework . . . 51

VII Legal Framework . . . 54

VIII Discussion and Conclusion . . . 58

5 Data Protection Issues Of Integrated Electronic Health Records (EHR) 61 1 Introduction . . . 61

2 Electronic Health Record . . . 62

3 Privacy-Preserving Data Publishing (PPDP) . . . 64

4 Access Control of EHR . . . 65

5 Cryptography . . . 66

1 Secrecy and Integrity . . . 66

2 Authentication . . . 66

3 Digital signatures . . . 67

6 Conclusion . . . 67

6 Electronic Health Record Application Support Service Enablers 69 1 Introduction . . . 69

2 Electronic Health Record - EHR SE . . . 71

3 Patient Summary - epSOS SE . . . 72

4 Imaging Platform : Picture Archiving And Communication System -PACs SE . . . 73

5 Integrated Interoperable eHealth Services . . . 75

6 Concluding Remarks . . . 76

7 eHealth Services for the European Reference Network on Rare Anaemias (eENERCA) 79 1 Introduction . . . 79

2 Information needed for patient and doctor services . . . 80

3 Functionality of the proposed eRegistry . . . 80

1 Demographics . . . 81

2 Diagnosis . . . 81

3 Clinical Data . . . 82

4 Discussion . . . 82

8 The use of eRegistries in building and upgrading services 83 1 Introduction . . . 83

1 eRegistries: A by-product of the Electronic Health Record . . 85

2 Conclusion . . . 90

9 Teaching and Integrating eHealth Technologies in Undergraduate / Post-graduate curricula and Healthcare Professionals’ education & training 91 1 Introduction . . . 91

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2 eHealth Education Curriculum . . . 95

1 Undergraduate Level . . . 95

2 Postgraduate Level . . . 101

3 Continuous Professional Education - TelePrometheus Paradigm 105

3 Current & future eLearning technologies in Health Care Education . 109

10 Summary and Outlook 111

1 Future work and open issues . . . 111

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