Paediatric health related quality of life : a European
perspective : instrument development, validation, and use
in clinical practice
Baars, R.M.
Citation
Baars, R. M. (2006, March 30). Paediatric health related quality of life : a European perspective : instrument development, validation, and use in clinical practice. Retrieved from https://hdl.handle.net/1887/18420 Version: Corrected Publisher’s Version
License: Licence agreement concerning inclusion of doctoralthesis in the Institutional Repository of the University of Leiden
Downloaded from: https://hdl.handle.net/1887/18420
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Paediatric
Health Related Quality of Life:
a European Perspective
Instrument development, validation, and use in clinical practice
Th e DISABKIDS project described in this thesis was fi nancially supported by: European Commission (QLG-CT-2000-00716).
Cover photo: R.M. Baars (Vietnam)
Lay-out and printing: Febodruk BV, Enschede ISBN 90-9020393-1
© 2006 R.M. Baars, Leiden, the Netherlands
Paediatric
Health Related Quality of Life:
a European Perspective
Instrument development, validation, and use in clinical practice
Proefschrift
ter verkrijging van
de graad van Doctor aan de Universiteit Leiden,
op gezag van de Rector Magnifi cus Dr. D.D. Breimer,
hoogleraar in de faculteit der Wiskunde en
Natuurwetenschappen en die der Geneeskunde,
volgens besluit van het College voor Promoties
te verdedigen op donderdag 30 maart 2006
klokke 14:15 uur
door
Rolanda Maia Baars
geboren te Puttershoek
Promotiecommissie
Promotor: Prof. Dr. J.M.Wit
Co-promotor: Dr. H.M. Koopman
Referent: Prof. Dr. R.J.B.J. Gemke (Vrije Universiteit Amsterdam)
“Que sera, sera”
Table of contents
Chapter 1 9
General introduction and outline of the thesis
Chapter 2 27
Clinicians' perspective on quality of life (QoL) assessment in paediatric clinical practice
Chapter 3 41
A child focus group methodology: experiences from the European DISABKIDS project
Chapter 4 55
Using cross-national focus groups to identify health related quality of life (HRQoL) aspects in children and adolescents with asthma and their parents: the European DISABKIDS approach
Chapter 5 73
Item selection after focus group research: the European DISABKIDS approach
Chapter 6 89
Th e European DISABKIDS project: development of seven condition-specifi c modules to measure health related quality of life (HRQoL) in children and adolescents
Chapter 7 107
Th e European DISABKIDS health related quality of life (HRQoL) instrument for children and adolescents with a chronic medical condition: psychometric properties of the cross-national asthma sample
Chapter 8 131
Implementation of the DISABKIDS instrument: general discussion
Chapter 9 149
Summary & Samenvatting
Appendix 159
DISABKIDS instrument Contact information
