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UvA-DARE is a service provided by the library of the University of Amsterdam (https://dare.uva.nl)

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Consequences of success in pediatrics: young adults with disability benefits as

a result of chronic conditions since childhood

Verhoof, E.J.A.

Publication date

2015

Document Version

Final published version

Link to publication

Citation for published version (APA):

Verhoof, E. J. A. (2015). Consequences of success in pediatrics: young adults with disability

benefits as a result of chronic conditions since childhood.

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Voor het bijwonen van de openbare verdediging van het proefschrift

door Eefje Verhoof Vrijdag 1 mei 2015 om 10.00 uur In de Agnietenkapel Oudezijds Voorburgwal 231 1012 EZ Amsterdam

Na afloop van de receptie bent u van harte uitgenodigd voor de receptie.

UITNODIGING

Consequences of

success in pediatrics

young adults with disability benefits as a result of chronic conditions

since childhood Eefje Verhoof James Cookstraat 40hs 1056 SC Amsterdam 06-52053758 PARANIMFEN Katrijn Rensing katrijnrensing@hotmail.com 06-17054079 Vivian Engelen vivianengelen@hotmail.com 06-47144880 C M Y CM MY CY CMY K EEFJE_bookcover.pdf 1 16/03/15 09:48

(3)

Eefje Verhoof

Consequences of

success in pediatrics

young adults with disability benefits as a

result of chronic conditions since childhood

(4)

door

Eveline Johanna Adriana Verhoof

geboren te Tilburg

COLOFON

This study was conducted within the Psychosocial Department and the Department of Pediatrics of the Emma Children’s Hospital, Academic Medical Center, University of Amsterdam.

The study was financially supported by a grant of the Knowlegde Centre of the Employee Insurance Agency (UWV), Start Foundation and the Ronald McDonald House Charities (RMHC).

The printing of this thesis was financially supported by Emma at Work. Cover : Rob & Nienke

Lay-out : Ilse Modder

Printed by : Gildeprint, Enschede ISBN/EAN : 978-94-6108-961-8

Copyright © 2015, Eefje Verhoof, Amsterdam, The Netherlands

All rights reserved. No part of this thesis may be reproduced, stored in a retrieval system, or transmitted in any form or by any means without prior permission in writing from the author.

ACADEMISCH PROEFSCHRIFT

ter verkrijging van de graad van doctor aan de Universiteit van Amsterdam op gezag van de Rector Magnificus

prof. dr. D.C. van den Boom

ten overstaan van een door het college voor promoties ingestelde commissie, in het openbaar te verdedigen in de Agnietenkapel

op vrijdag 1 mei 2015, te 10.00 uur

Consequences of

success in pediatrics

young adults with disability benefits as a

result of chronic conditions since childhood

(5)

PROMOTIECOMMISSIE

PROMOTOR :

CO-PROMOTORES : OVERIGE LEDEN :

Faculiteit der Geneeskunde

CONTENTS

CHAPTER 1

General introduction and outline of the thesis CHAPTER 2

Growing into disability benefits? Psychosocial course of life of young adults with a chronic somatic disease or disability

CHAPTER 3

Health-related quality of life, anxiety and depression in young adults with disability benefits due to childhood-onset somatic conditions CHAPTER 4

Health-related quality of life and psychosocial developmental trajectory in young female beneficiaries with JIA

CHAPTER 5

Psychosocial well-being in young adults with chronic illness since childhood: the role of illness cognitions

CHAPTER 6

Are survivors of childhood cancer with an unfavourable psychosocial developmental trajectory more likely to apply for disability benefits? CHAPTER 7

Getting to work: factors associated with work participation in young adults with a childhood-onset chronic condition

CHAPTER 8 General discussion

DEVELOPMENT OF WAJONG BENEFITS SUMMARY

DUTCH SUMMARY

PORTFOLIO AND PUBLICATIONS WORD OF THANKS

ABOUT THE AUTHOR

07 41 63 87 105 131 151 173 215 221 233 247 255 263 -35 59 81 99 125 145 171 213 219 231 245 253 261 265 Prof. dr. H.S.A. Heymans

Prof. dr. M.A. Grootenhuis Dr. H. Maurice-Stam Prof. dr. J.B. van Goudoever Dr. J.W. Groothoff

Prof. dr. F. Nollet Prof. dr. C. Schuengel Dr. A.L. van Staa Prof. dr. H. Wind

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