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The impact of quantified self data on healthcare

GSMS PhD congres ‘Create your Future, Discover Talent’ Dr. Martijn de Groot

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• As a result of self monitoring

– Increased autonomy

– New patient-GP interaction

– Lowering of medicine intake!

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QS Community

• Founded in 2007 by Gary Wolf and Kevin Kelly

• 2010: TED talk by Gary Wolf

• 2011: First international conference California

• May 2015: 206 groups in 38 countries

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Principle questions

What did you do?

How did you do it?

What did you learn?

www.meetup.com/qsgroningen www.meetup.com/qsamsterdam

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Netwerk Organisation

• To encourage a healthy lifestyle through technology, science and fun. • Focus on ‘the big five for healthy life’

– Physical activity & sports – Food

– Sleep

– Stress & relaxation – Social interaction

• Availability, Creativity, Validity and Efficacy

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1 2

Bring Data Self-tracking;

for personal reason

Self-tracking; at request of health

care provider

Care/cure Lifestyle, health/wellness

Bring Data

All about data…

A huge

amount of

personal

data…

And a lot of

stakeholders

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http://www.digitalezorggids.nl/blog/quantified-self-quantified-us-quantified-other

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Apple Research Kit

Within a couple of weeks, 60.000 volunteers…

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Points of interest and debate

• Quality of the data

(validity and reliability)

• Data acces and control

(Privacy and safety)

• Data sharing

(usability, interoperability and

incentives)

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1= Fitbit Zip 2= Misfit Shine 3= Nike+Fuelband 4= Omron 5 = Withings Pulse 6 = Fitbit Flex 7 = Digiwalker SW-200 8 = Lumoback 9 = Jawbone Up 10 = Moves app

Reliability and Validity of ten consumer activity trackers.

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• Lab condition

– 30 minutes walking on a treadmill, 2 times. – N=33

– Gold standard: Optogait system. • Free-living condition

– One day (9:00-16:30).

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Results – Lab condition

Mean number of steps walked (95 % CI), measured in the Lab condition.

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Results – free-living condition

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Norm values validity

• Activity monitors should not have more than 1% error

deviation during walking on a treadmill in order to be

named accurate. (Tudor-Locke, 2004)

• In free-living conditions, an acceptable mean

deviation from the gold standard is 10%. (Tudor-Locke,

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Validity - mean percentages error Lab study -100 0 100 200 300 Moves app Omron Misfit Shine Lumoback ActivPal Fitbit Zip Pulse Jawbone Up Digiwalker 319; 9.8% -1% +1% -5.7% 2,5% -1.2 %

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+10% -37.6% -1400 -1200 -1000 -800 -600 -400 -200 0 200 400 600 Zip Pulse Shine Flex Jawbone Up Nike FB Omron Digiwalker Moves App Lumoback -10% - 24 % +10%

Validity - mean percentages error

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Test-retest reliability

Activity tracker Intraclass Correlation Coefficient 95% confidence Interval Optogait .92** .85 - .96 ActivPAL .96** .90 - .99 Lumoback .90** .79 - .95 Fitbit Flex .81** .64 - .91 Jawbone UP .83** .66 - .91 Nike+ Fuelband .53** .22 - .75 Misfit Shine .86** .73 - .93 Withings Pulse .92** .83 - .96 Fitbit Zip .90** .80 - .95

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Conclusion

• All trackers showed good reliability, except for the Omron, Nike+Fuelband and Moves app.

In the lab situation, the Fitbit Zip, Lumoback, Withings Pulse, Misfit Shine and Jawbone Up showed the highest validity.

• Nike+ Fuelband and Moves app: low validity

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Discussion

• Reliability vs. validity /

within subject vs. cross-sectional. • Lab vs. field.

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The day before tomorrow

• Preventive and predictive

• Personalised

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Martijn de Groot: ma.de.groot@pl.hanze.nl

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